Welcome to the Fundraising Page of Natalie Rose
Natalie Rose was born May 19th, 2017. Natalie came 10 weeks premature, suffering from a serious and often fatal condition called HYDROPS (fluid build-up in multiple organs), and SVT (rapid, irregular heartbeat). Natalie passed away on August 15th peacefully in the arms of her mom and dad. She fought hard for nearly 3 months, with Hollie and Adam at her bedside night and day. We thank you for your prayers, your love and your support.
Donations are being accepted for Hollie, Adam, Ben and Natalie.
My Personal Web Log
Hello Family and Friends,
It brings us great sadness to share Natalie Rose Maiberger was taken off life support yesterday and her spirit was released into the heavens to join our Maker. Adam and Hollie have been by her side comforting her, praying, talking, singing with constant vigilence, and saying their good byes the last 2 weeks.
Yesterday, Hollie held Natalie in her arms for the first time in weeks; they went outside on a patio off the NICU wing and Mom and Dad said their final goodbyes.
They were home last night with Bennie - all together - for the first time in 107 days. We have heavy hearts, but are grateful to God our little one is no longer suffering and our NICU Warrior Princess is home with Jesus.
Thank you again for your love, and thoughts and prayers throughout the past serveral months; and asking for updates. We feel a sense of closure now. Our prayers have been answered. Not necessarily what we wanted to hear, but we know our Lord works in mysterious ways and her name and memory will live forever.
by Sarah Burton on Thu, Aug 17, 2017 @ 2:03 PM
Update on Natalie Rose
Our darling daughter Natalie is really struggling and fighting each moment for her life. Yesterday she was quite near death. She is in acute respiratory failure and has a severe infection. She was on maximum oxygen, maximum ventilator settings, and still having very toxic levels of CO2 building up in her blood and her heart rate was dropping and dropping and rhythm becoming more and more erratic. We were told initially that there was nothing else that could be done for her...and we were saying goodbye and watching her struggle. We were told that there was one more treatment but she wouldn't be a good candidate for it due to her heart condition. However, after further consultation, cardiology felt that they could control her heart rate and we opted to start her on ECMO. Catheters have been placed in her jugular and some other major vein or artery in the neck, and all of her blood is
being pumped outside of her body by a machine. It is artificially oxygenated, CO2 ventilated, and warmed...and then cycled back into her. It is essentially an artificial lung and heart. The hope is that this will allow her lungs to rest so they can heal, and once she fights the infection away, we can wean her back onto a ventilator and eventually back to where she was before she got sick. It is a temporary bridge, not something she can stay on for an extended period of time and comes with high risk (stroke, blood clots, brain bleeds, death), but the possible benefit of life outweighs those risks as she will surely die without this effort. She has chronic lung disease among many other health conditions as you know, so we will still have ongoing challenges. But, this will hopefully save her life. She has been on life support for some time, and this is truly a last resort, final line of
support that can be offered to her. The rest is up to God, and to Natalie to fight. The hospital has offered us a private room her in the NICU where we can sleep right across the hall from her. Yesterday was incredibly traumatic. Adam and I are exhausted and full of fear and anxiety, but we are together and supporting each other. Natalie is stable on the ECMO system and we are at her bedside with hands on her body every moment. Thank you to everyone that has been praying and sending love and hope. She needs it more than ever over the next 2 weeks. She needs to show response to the antibiotic over the next couple of days, and needs to be able to tolerate some weaning from ECMO over the next couple weeks. Otherwise...we will have to let her go. We love you all and we know how much you love Natalie. Please feel free to share this post with anyone with whom you feel inclined...God needs
to hear us!
Hollie, Adam, Benjamin, and sweet
Natalie Rose Maiberger
by Sarah Burton on Fri, Aug 04, 2017 @ 2:26 PM
ABOUT THE RAISING HOPE PROJECT
Steven's Hope for Children created the
Raising Hope Project to help families to help themselves to resolve some of the
financial issues. By using this site, families can reach out to friends and
family for support while getting guidance from Steven's Hope on how to share
their story to the public, raise money for their expenses and to promote Steven's Hope for Children.
Donations are made to Steven's Hope, a 501c3 nonprofit.and are placed in a restricted fund pool for Raising Hope Families.Neither families nor donors pay any fees on any contributions made in honor of the child. The Raising Hope Project is a service provided by Steven's Hope for Children for the benefit of seriously ill children and their families. For information about Steven's Hope, visit www.stevenshope.org.
Please, help us with a contribution to the Raising Hope Project today.
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