Welcome to the Fundraising Page of Sarah Barajas
Just a few short months after she was born, Sarah needed a heart transplant. Now 7 years later, she is back at Loma Linda University Children's Hospital while her mom & dad stay at a Steven's Hope for Children apartment.
Below are updates on Sarah's journey. Please share this information and consider making a donation in honor of Sarah.
My Personal Web Log
Sarah Update 4-6-16
Sarah is doing alright. She got shots this week to help boost her immune system. She is now getting those twice a week. Insurance has finally approved surgery to remove her appendix and do a biopsy on her liver. It has been scheduled for April 18th as long as Sarah doesn't sick or have any infections. Right now, her mom Cindy is sick so hopefully she doesn't catch it from her.
by Sarah Barajas on Thu, Apr 14, 2016 @ 1:11 PM
Sarah Update 3-30-16
Sarah is doing well. She still gets pain in her stomach because of her appendix. The doctors say that will be normal until she gets surgery. We are still waiting on insurance to approve the surgery. Right now she is taking antibiotics for the infection.
by Sarah Barajas on Thu, Apr 14, 2016 @ 1:10 PM
Sarah Update 3-23-16
Sarah is feeling ok. She hasn't had to be admitted to the hospital for several days, so she is improving. She threw up a little over the weekend, but she is otherwise ok. She is eating, which is good news because she has a hard time eating and she is very small. She experiences some pain here and there but nothing too substantial. Right now we are waiting on a surgery date to remove her appendix and do the biopsy on her liver.
by Sarah Barajas on Thu, Apr 14, 2016 @ 1:09 PM
Sarah Update 3-16-16
Sarah was in the hospital over the weekend. She was released late Monday night. Mom says she has to stay in the hospital every couple of days. She thinks this is because the medicine they send Sarah home with is not as strong as what the doctors give her in the hospital, so she relapses. Right now they are waiting for approval for the appendix removal surgery. When they perform that surgery they will also do the biopsy on her liver.
by Sarah Barajas on Thu, Apr 14, 2016 @ 1:09 PM
Sarah Update 3-9-16
Sarah is looking better. She was able to go back home at the end of last week. She had her follow up appointment with transplant this morning and will be having her follow up appointments for her liver and appendix on Thursday. She will then see transplant again in 1 week. Sarah will need an ultrasound to check out the spot on her liver. She currently is on antibiotics to prevent any infections. In 3 weeks they plant to remove her appendix.
by Sarah Barajas on Thu, Apr 14, 2016 @ 1:08 PM
Sarah Update 3-2-16
Sarah was finally able to go home from the hospital on Friday. However, by Sunday night she was back in the hospital. Her intestines got backed and she had inflammation in her tummy. She was vomiting a lot. The doctors have been draining out her intestines through a tube they placed in her nose. Hopefully this will help and they won't have to do surgery. They put her on a liquid diet to see how she does before incorporated solids back in to her diet. Unfortunately, all of this means her biopsy for her liver will have to be pushed back. It was supposed to take place on Thursday. She also will need surgery to have her appendix removed.
by Sarah Barajas on Thu, Apr 14, 2016 @ 1:07 PM
Sarah Update 2-25-16
Over the weekend the doctors decided to give Sarah a blood transfusion. They have been taking a lot of blood from her for tests and she was starting to have low levels of hemoglobin and was feeling very weak. They did the transfusion on Monday. The doctors also discovered something on her liver, and they are concerned it might be cancer. They did a full body scan on Tuesday and this morning Sarah saw the radiologist. Everything is still unclear so they may have to do a biopsy. The blood transfusion did help Sarah with her energy levels. However, she is still taking antibiotics for her infection. She will be in the hospital for another week until she is finished with the antibiotics. Cindy also said that the doctors will perform surgery to remove Sarah's appendix in 6-8 weeks once she has recovered from the infection.
by Sarah Barajas on Thu, Apr 14, 2016 @ 1:06 PM
Sarah Update 2-17-16
Over the weekend, Mom texted me and said Sarah had to have surgery. She is having issues with her appendix and is fighting an infection. The doctors can't remove the appendix because Sarah may bleed too much due to the heart meds she is taking. Instead, they have out a tube in her stomach to drain the fluid. She has been on antibiotics for the last couple days. The doctors have to poke Sarah often to get bloodwork, which is the worst part of staying in the hospital for her. She gets bruised badly from the pokes. They tried making a small incision near her chest and put a pick line in so that they can get all their blood work from there so they wouldn't have to poke her, but after an hour of trying they were unsuccessful. They will try again tonight. I have attached a photo of Sarah taken over the weekend.
by Sarah Barajas on Thu, Apr 14, 2016 @ 1:01 PM
Sarah Update 2-10-16
Over this last week, Sarah's great- grandmother passed away. Cindy is taking it pretty hard, her grandmother was like a mother to her. Sarah and the kids were close to her as well and are feeling down. We decided to give the family some space this week. I have let Cindy know to call us if she needs anything.
by Sarah Barajas on Thu, Apr 14, 2016 @ 12:59 PM
Sarah Update 1-27-16
Sarah's blisters around her mouth are finally starting to go away thanks to the new meds. It is still there, but it does not look as red and swollen. This is good, since it was so painful it was hard for her to eat, and she is already small for her size. The doctors still want to do the procedure where they put the camera down Sarah's throat to see if she has blisters in her stomach as well. Sarah is really susceptible to getting sick right now, so she can't be outside too much. Everyone else is ok, but Cindy is trying to potty train Xavier. It is not going well.
by Sarah Barajas on Thu, Apr 14, 2016 @ 12:58 PM
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